Tyler had an allergist visit yesterday so I figured I'd kill 2 birds with 1 stone and do a quick weight check at the GI's office since it's less than a mile from the allergist office. (The allergist doesn't have an infant scale and the plop-him-on-the-scale-with-clothes-and-a-diaper weight skews any progress.) The scale read 19 lbs 12.4 ounces, a +7.4 oz gain in one week. Wahoo! To say the ng tube is working is an understatement. Usually Tyler would take a month or two to gain that much weight.
Dr. Shimamoto was pleased with the gain and would like to try apples or pears next week. He is hoping to have Tyler on a couple foods before we do another scope. Originally we had an appointment to see McOmber in July but I got a call from McOmber's office this morning saying they could get us in June 7th. I can't wait to see what the scale says in a week and a half.
Showing posts with label weight. Show all posts
Showing posts with label weight. Show all posts
Friday, May 27, 2011
Friday, May 20, 2011
Tyler's new look
Through the nose, over the ear, then taped to the back.
Placement wasn't a fun thing for me. The nurse has done it for 19 years, only hit the airway once. "Chances of doing that are slim."
She does it perfectly and quickly. Mister C gets it down with no problem. I get halfway and pause because I feel something hard. I freak out and pull it out. The nurse asks if I saw what happened to him. I was so focused on how it "felt" going down I wasn't paying attention to his face. Apparently the nurse and Mister C noticed he started turning a blue-ish color. (I hit his airway.) I had to try it again and now Tyler is beyond pissed. I get it down and he is screaming bloody murder. We are so focused on consoling him we don't notice all the formula in his stomach was emptying on the table behind him.
Mental note: Make sure the end port is closed when inserting.
Here is to hoping he won't pull it out when he's in his crib.
We had to do syringe feedings last night because the pump isn't getting delivered until this afternoon. So far so good.
*Post edit: The tube lasted a little over 48 hours before he yanked it out. His brothers now get to see firsthand how "fun" it is to put a feeding tube in.
Placement wasn't a fun thing for me. The nurse has done it for 19 years, only hit the airway once. "Chances of doing that are slim."
She does it perfectly and quickly. Mister C gets it down with no problem. I get halfway and pause because I feel something hard. I freak out and pull it out. The nurse asks if I saw what happened to him. I was so focused on how it "felt" going down I wasn't paying attention to his face. Apparently the nurse and Mister C noticed he started turning a blue-ish color. (I hit his airway.) I had to try it again and now Tyler is beyond pissed. I get it down and he is screaming bloody murder. We are so focused on consoling him we don't notice all the formula in his stomach was emptying on the table behind him.
Mental note: Make sure the end port is closed when inserting.
Here is to hoping he won't pull it out when he's in his crib.
We had to do syringe feedings last night because the pump isn't getting delivered until this afternoon. So far so good.
*Post edit: The tube lasted a little over 48 hours before he yanked it out. His brothers now get to see firsthand how "fun" it is to put a feeding tube in.
Thursday, May 19, 2011
2 week wait is over
We had our two week weight check last Wednesday. Tyler was +4.5 oz in 2 weeks. Yay!
Around the same time as last week's weight check he decided he isn't as hungry as he ought to be. Yesterday we struggled to get him to drink 12 scoops, not even close to his minimum of 25/day. Went in for a weight check this morning and he was -1 oz from last Wednesday.
And still not hungry.
He is having an NG tube placed this afternoon. Look for a follow-up post later today or tomorrow. Fingers crossed he does well and he starts plumping up.... soon!
Around the same time as last week's weight check he decided he isn't as hungry as he ought to be. Yesterday we struggled to get him to drink 12 scoops, not even close to his minimum of 25/day. Went in for a weight check this morning and he was -1 oz from last Wednesday.
And still not hungry.
He is having an NG tube placed this afternoon. Look for a follow-up post later today or tomorrow. Fingers crossed he does well and he starts plumping up.... soon!
Thursday, April 28, 2011
{Bad words, bad words} + a 2 week wait
{Bad words bad words bad words} seems to be commonplace in my mind lately.
Here is a glimpse of the latest happenings....
Tyler needs to consume 1,000 calories a day. With his current formula concentration he should drink approximately 40 ounces a day. On a good day he drinks 25. Mister C wakes Tyler up during the night to dream feed another 120+ calories (5 ounces) into him. Sometimes he is successful, other times he is not. We compensated for the lack of calories by adding a little bit of oil to his green beans and soy diet. He hates soy. I spent time squeezing edamame out of the pods so they were ready to eat just in case he changed his mind. He hasn't. I cooked up some tofu stir fry drizzled with gluten free soy sauce. He hates tofu.
Now he hates green beans. Judging solely by his behavior, it appears green beans may actually be a trigger food.
So we go back to square one and he is only consuming vanilla Elecare. (Insurance is being a nightmare. That in and of itself can be a post.)
Life is grand. :)
----------------------------------------
We had a weight check with Doctor Laks yesterday. Tyler has lost weight since we saw her at the beginning of April. The current diet should have eliminated his eosinophilic triggers and his appetite should have increased. He should have put on a little weight but he is Tyler.
The GI wants to wait 2 weeks before we place an NG tube. His thinks giving Tyler a full month of "clean" foods will be beneficial, Laks thinks it'd be beneficial for Tyler to gain weight ASAP. She is not as happy with his lack of appetite as we have become. (Have I mentioned I love her?)
So we wait 2 weeks. Fingers crossed he gains weight or there will be two unhappy women (and a father) making some phone calls.
Here is a glimpse of the latest happenings....
Tyler needs to consume 1,000 calories a day. With his current formula concentration he should drink approximately 40 ounces a day. On a good day he drinks 25. Mister C wakes Tyler up during the night to dream feed another 120+ calories (5 ounces) into him. Sometimes he is successful, other times he is not. We compensated for the lack of calories by adding a little bit of oil to his green beans and soy diet. He hates soy. I spent time squeezing edamame out of the pods so they were ready to eat just in case he changed his mind. He hasn't. I cooked up some tofu stir fry drizzled with gluten free soy sauce. He hates tofu.
Now he hates green beans. Judging solely by his behavior, it appears green beans may actually be a trigger food.
So we go back to square one and he is only consuming vanilla Elecare. (Insurance is being a nightmare. That in and of itself can be a post.)
Life is grand. :)
----------------------------------------
We had a weight check with Doctor Laks yesterday. Tyler has lost weight since we saw her at the beginning of April. The current diet should have eliminated his eosinophilic triggers and his appetite should have increased. He should have put on a little weight but he is Tyler.
The GI wants to wait 2 weeks before we place an NG tube. His thinks giving Tyler a full month of "clean" foods will be beneficial, Laks thinks it'd be beneficial for Tyler to gain weight ASAP. She is not as happy with his lack of appetite as we have become. (Have I mentioned I love her?)
So we wait 2 weeks. Fingers crossed he gains weight or there will be two unhappy women (and a father) making some phone calls.
Saturday, March 26, 2011
The History Part 1
Pregnancy with Tyler, not so fun. During the entire pregnancy I could not drink milk, eat any nuts, peanut butter, eggs, cheese, tomatoes, and any form of meat. Being that it was 100% different than my other pregnancies (all of which resulted in 4 boys), we fooled ourselves into thinking it was a girl.
Not so much.
We fooled ourselves into thinking we were entirely prepared for whatever Baby TyTy threw at us because we were "experienced" parents.
Not so much.
He was born via c-section (#5), doctors were surprised to find him feet first. He started crying while part of his head was still inside my stomach so the doctors hurried to squish his head out as fast as they could. Initially he had some fluid in his lungs but was fine within 24 hours. (Too bad my new abdominal hernia was a different story.)
Then the screaming started.
BEHAVIOR: He would scream. And scream. Then scream some more. He would scream at random hours. It was never at a consistent time or every single day so we couldn't pinpoint the cause of the madness. Our eldest had colic so we thought WORST case scenario he would outgrow it within a few months. Tyler again would prove us wrong.
APPETITE: Tyler was/is not a big eater. He was a decent nurser but would only eat enough to subside his hunger pains but never enough to drain me/stuff his belly. We attempted dream feeds (where they nurse while still asleep) but he refused those too. It was very unusual for us to have a baby who did not like to eat.
GROWTH (weight in percentiles): Born 8 lbs 1 oz (just over the 50th percentile)
- 1 month: 80th
- 2 months: 75th
- 4 months: 60th (Maternal instinct kicks in, doctor says it's because I am breastfeeding and Tyler needing to start solids. I wasn't so sure and opted to wait.)
- 6 months: 40th (Seriously? Doctor says, "You waited too long to start solids and now we have to play catch-up. Don't worry, he's fine." I know something is off.... Mister C and I aren't small people and, up until this point, had yet to create a small child. Tyler started solids. He was NOT interested. He would either nurse or eat solids but not both.)
- 9 months: 20th (Doctor: "He dropped again. Does CF run in your family? Maybe it's because he has an ear infection. It's possible his thyroid could be off. Let's run some tests. Do not worry though, he is too happy to be sick. Stop nursing and switch to formula and he will gain weight.")
- 10 months: 18thish (Maternal instinct: Something is seriously wrong! "We have to pin him down with 2 arms and shove food in his mouth. HE WON'T EAT!" / Doctor: "Blood work came back normal. It's a control thing. Do not force feed, only 3 meals + 1 snack. Trust me, he will be hungry and will eat again. See you again in 2 weeks.")
- 10 1/2 months: 8th (We don't force feed and he loses 3/4 of a pound in 2 weeks. Pediatrician thinks I have gone off the deep end, feels there is no reason to worry. Doctor: "Maybe he is not going to be a big kid/eater. You should never compare your children; even though all [four] of your other children are big for their age, he is just a small baby. If anything changes come back in ASAP." Strong words for a kid who is just 'small' don't you think? :)
- 1 day later: Tyler drank more than 5 oz at one time, first time ever. I do the happy dance. I lay him down to sleep and within 30 minutes I hear gagging coming from his room. I go in and find him half asleep and projectile vomiting. I call the doctor.
- 1 day later:- He has now dropped to the 3rd percentile. (Thinking perhaps our other pediatrician is not picking up on the urgency of the matter we see a different doctor. New Doctor: "He is completely healthy. Look at him.... I am holding him and he is not acting sick. He is fine, stop worrying." After some much needed convincing and pushing from my friends I become a strong advocate for my child and make an appointment with a pediatric gastroenterologist without pediatrician's knowledge. {I felt like an ignorant parent when I made the appointment; Receptionist: "And the reason for Tyler's appointment?" / Me: "Failure to thrive and not having an appetite. He's not hungry so I know something is wrong."} Appointment set.)
- The following week: Pediatrician calls me. (Old Ped: "We finally got the last set of lab results back and it appears he has something going on internally. His celiac serum level came back abnormal. You need to see a GI doctor. Don't worry too much about the results though because they can be a false positive [abnormal]." / I had no words. At last I am not crazy.)
- 10 3/4 months: 3rd percentile. Tyler sees Dr. Mark McOmber. (He mentions {without trying to speak negatively about the pediatrician} with Tyler's symptoms and behavior we should have come to him months ago. I love Dr. McOmber.)
-----------------------
History Part 2 to follow.
Not so much.
We fooled ourselves into thinking we were entirely prepared for whatever Baby TyTy threw at us because we were "experienced" parents.
Not so much.
He was born via c-section (#5), doctors were surprised to find him feet first. He started crying while part of his head was still inside my stomach so the doctors hurried to squish his head out as fast as they could. Initially he had some fluid in his lungs but was fine within 24 hours. (Too bad my new abdominal hernia was a different story.)
Then the screaming started.
BEHAVIOR: He would scream. And scream. Then scream some more. He would scream at random hours. It was never at a consistent time or every single day so we couldn't pinpoint the cause of the madness. Our eldest had colic so we thought WORST case scenario he would outgrow it within a few months. Tyler again would prove us wrong.
APPETITE: Tyler was/is not a big eater. He was a decent nurser but would only eat enough to subside his hunger pains but never enough to drain me/stuff his belly. We attempted dream feeds (where they nurse while still asleep) but he refused those too. It was very unusual for us to have a baby who did not like to eat.
GROWTH (weight in percentiles): Born 8 lbs 1 oz (just over the 50th percentile)
- 1 month: 80th
- 2 months: 75th
- 4 months: 60th (Maternal instinct kicks in, doctor says it's because I am breastfeeding and Tyler needing to start solids. I wasn't so sure and opted to wait.)
- 6 months: 40th (Seriously? Doctor says, "You waited too long to start solids and now we have to play catch-up. Don't worry, he's fine." I know something is off.... Mister C and I aren't small people and, up until this point, had yet to create a small child. Tyler started solids. He was NOT interested. He would either nurse or eat solids but not both.)
- 9 months: 20th (Doctor: "He dropped again. Does CF run in your family? Maybe it's because he has an ear infection. It's possible his thyroid could be off. Let's run some tests. Do not worry though, he is too happy to be sick. Stop nursing and switch to formula and he will gain weight.")
- 10 months: 18thish (Maternal instinct: Something is seriously wrong! "We have to pin him down with 2 arms and shove food in his mouth. HE WON'T EAT!" / Doctor: "Blood work came back normal. It's a control thing. Do not force feed, only 3 meals + 1 snack. Trust me, he will be hungry and will eat again. See you again in 2 weeks.")
- 10 1/2 months: 8th (We don't force feed and he loses 3/4 of a pound in 2 weeks. Pediatrician thinks I have gone off the deep end, feels there is no reason to worry. Doctor: "Maybe he is not going to be a big kid/eater. You should never compare your children; even though all [four] of your other children are big for their age, he is just a small baby. If anything changes come back in ASAP." Strong words for a kid who is just 'small' don't you think? :)
- 1 day later: Tyler drank more than 5 oz at one time, first time ever. I do the happy dance. I lay him down to sleep and within 30 minutes I hear gagging coming from his room. I go in and find him half asleep and projectile vomiting. I call the doctor.
- 1 day later:- He has now dropped to the 3rd percentile. (Thinking perhaps our other pediatrician is not picking up on the urgency of the matter we see a different doctor. New Doctor: "He is completely healthy. Look at him.... I am holding him and he is not acting sick. He is fine, stop worrying." After some much needed convincing and pushing from my friends I become a strong advocate for my child and make an appointment with a pediatric gastroenterologist without pediatrician's knowledge. {I felt like an ignorant parent when I made the appointment; Receptionist: "And the reason for Tyler's appointment?" / Me: "Failure to thrive and not having an appetite. He's not hungry so I know something is wrong."} Appointment set.)
- The following week: Pediatrician calls me. (Old Ped: "We finally got the last set of lab results back and it appears he has something going on internally. His celiac serum level came back abnormal. You need to see a GI doctor. Don't worry too much about the results though because they can be a false positive [abnormal]." / I had no words. At last I am not crazy.)
- 10 3/4 months: 3rd percentile. Tyler sees Dr. Mark McOmber. (He mentions {without trying to speak negatively about the pediatrician} with Tyler's symptoms and behavior we should have come to him months ago. I love Dr. McOmber.)
-----------------------
History Part 2 to follow.
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